Bentley has a heart condition called Tetralogy of Fallot. To break it down TOF has four defects in the heart, it is a complex heart condition that requires open heart surgery for survival. There will possibly be two more open heart surgeries in the future. This will remain unknown until Bentley goes through her first open heart surgery. With TOF we have to monitor Bentley's oxygen level closely. With TOF the heart is not failing, the child is suffocating. So her oxygen level must remain in a safe range. Because of this Bentley is not allowed to get upset and cry excessively. This will cause her oxygen level to go down and possible bring on a tet spell which could cause her to quit breathing. Children with TOF are usually called a “blue baby” because their skin tone is often blue due to low oxygen. We have been very blessed, Praise God, Bentley has fought this like crazy and she is doing amazing. With that said, the fact still remains that the defect is there and will require open heart surgery for survival, there is no other way around this. Believe me...I have looked and search for other options, but open heart surgery is the only thing. Bentley is scheduled for her OHS (open heart surgery) next month (in May). Please keep Bentley in your prayers. We pray that her surgery goes as smoothly as possible, considering all the risks that come along with such a surgery. My heart aches for her every second of the day. We greatly appreciate any and all prayers. 
Thank you so much Angie for all you do. I am so very blessed to have met you (online) a few years back. You are such an amazing person and you inspire me in so many ways!Blessings, Crystal
http://www.youandmeplusthree.com/
Labels: daughter, infant, open heart surgery, Prayers for Bentley, Tetralogy of Fallot, TOF

I will be praying for your daughter! Isn't it awesome that Angie created a place for us to pray for our children?!
I know my friend will be so honored that you are praying for her daughter Abby Grace.
Blessings to you,
Rachel