Tuesday, December 22, 2009
PRAYERS FOR ALICEN WOOLEY

UPDATE AS OF JANUARY 11th, 2010: I am literally hollering this at this time. Thank you all for your prayers. Alicen finally came home from the hospital on Tuesday January 5, 2010. She has been so happy since coming home, giggling all the time. She is officially weaned off of the Methadone and the Lorazapam now. That was a little scary to be responsible for such a powerful narcotic. But thank the good Lord, she is off of it now and is doing really good. We have a follow up with the pediatrician but I'm going to wait till it warms up before I get her out of the house. At this time it is about 19 degrees. Ha Ha. And thanks to all who sent the ecards. I think she received about 300 of them. There was even one from the Philippines. I was totally blown away at the amount of prayers that were sent up for Alicen and I'm so thankful. I wish I could thank them all personally but I will have to ask you to do that for me. Again, thank you so much for all you have done for my little family and for most importantly the prayers. Love ya, Christina

Here is some information on the angel baby, or who I affectionately call TURKEY TOES...

Alicen was born 4 months premature weighing only 1 lb and 13 ounces. She was in the NICU at Carle Foundation Hospital in Urbana Illinois for 111 days. She has since been diagnosed with many disabilities. They include Cerebral Palsy, Epilepsy, Plagiocephaly, Bronchial Pulmonary Dysplasia, Chronic Asthma, Chronic Pneumonia, Dysphasia (failure to thrive), she has a JG feeding tube, she feeds continuously through the night from 5pm through 6am. She is legally blind, she cannot walk, sit up, roll, but boy does she kick and holler like a trooper. She so vocal that she lets everyone know that she is here, bless her soul. That saying (NOT BEING ABLE TO SPEAK IS NOT THE SAME AS NOT HAVING ANYTHING TO SAY) truly suits her to a great big capital T. Anyway, she is totally dependant on us for all of her needs, she is wheel chair dependant. I had a nurse tell me at one point that it looks like Alicen was swimming in a dry puddle because she is constantly kicking and going is circles, how cute is that?

Her favorite tv show is (are you ready for this??) The Young and the Restless soap opera, she giggles all the way through it. We have to turn the volume almost all the way up in order to hear it ourselves. She also LOVES the commercial for Hillshire Farm, Go Meat, I say hillshire you say farm. She giggles when she hears it. She had had Many many hospital stays in her short life and she comes out of the hospital just as happy as she was before she got sick. This child has to be the happiest baby in the world, and by far the most beautiful little red head as well.

She has had many many hospital stays in her short life and she comes out of the hospital just as happy as she was before she got sick. This child has to be the happiest baby in the world, and by far the most beautiful little red head as well.

On Tuesday December 15, 2009 though, she was taken to Sarah Bush Lincoln Hospital emergency room by ambulance and within an hour of arrival she intubated and put on a ventilator due to respiratory distress, her O2 level was at 56 and her heart rate was way over 200. The arranged to have her air-lifted and St. Johns sent their helicopter team to Mattoon. They could not get her stabilized for almost 2 hours so they could transport her. I have never been more scared in my life. The helpless feeling a mother has to watch her daughter laying in a hospital bed is bad enough but the feeling I had watching her almost die is totally indescribable, something I would not wish on anyone.

At this time December 22, she remains at St. Johns Children’s Hospital in Springfield, Illinois. She is in a paralytic coma and is very heavily sedated. They are taking xrays each day and they are showing small improvements, Praise God. We need so many prayers for her right now. God has given her doctors the knowledge to treat her but it is God who will heal her and I firmly believe that. My husband, Derald, is laid off so at this time he is staying at the hospital and I go up every couple days to be with her so he can go home. I'm out of vacation and sick time at work so when I'm gone it is without pay. We cannot get Alicen on Social Security because they say we make too much money, can you believe that? Me neither.

Beings that Alicen is still in the hospital, I'm doing what I am calling “WRAP THE ROOM”. Anyone can go on the hospital web site and send her an e-card and I'm hanging all of them in her room. I've also decorated her room with Christmas decorations. She has never been away from home on Christmas before and I want to make it as much like home that I can. Your readers can send an e-card to her by following these steps: Go to st-johns.org, click on children’s hospital, click on send an e-card. Fill out the card with her info. Her full name is Alicen Wooley and her room number is the "Pediatric ICU." This is such a simple thing to do and it doesn’t cost a cent but will make such a difference to Alicen.

Angie, I can literally feel the love that you have inside you as well as the love your blog followers have in them. I'm asking with all that I have inside me for prayers and thoughts for Alicen. (And the e-cards will be nice too!) Thank you for all that you do and most importantly, thank you for your prayers.

Christina (a preemie mom)

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posted by Angie Seaman at 8:28 AM | 1 comments

Wednesday, June 3, 2009
PRAYERS FOR ABBY GRACE
I know you put up a prayer request for Abby Grace a few weeks back..they now have found what the issue is.. she has a growth on part of her brain...

I wanted to give you her prayer blog so that you could add it to your prayer blog..

www.prayingforabbygrace.blogspot.com

you can go there to read the update on abby grace..

thank you for being a blessing!

Blessings!
Rachel Marquez

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posted by Angie Seaman at 2:46 PM | 0 comments

Friday, April 10, 2009
PRAYERS FOR BENTLEY
Bentley has a heart condition called Tetralogy of Fallot. To break it down TOF has four defects in the heart, it is a complex heart condition that requires open heart surgery for survival. There will possibly be two more open heart surgeries in the future. This will remain unknown until Bentley goes through her first open heart surgery. With TOF we have to monitor Bentley's oxygen level closely. With TOF the heart is not failing, the child is suffocating. So her oxygen level must remain in a safe range. Because of this Bentley is not allowed to get upset and cry excessively. This will cause her oxygen level to go down and possible bring on a tet spell which could cause her to quit breathing. Children with TOF are usually called a “blue baby” because their skin tone is often blue due to low oxygen. We have been very blessed, Praise God, Bentley has fought this like crazy and she is doing amazing. With that said, the fact still remains that the defect is there and will require open heart surgery for survival, there is no other way around this. Believe me...I have looked and search for other options, but open heart surgery is the only thing. Bentley is scheduled for her OHS (open heart surgery) next month (in May). Please keep Bentley in your prayers. We pray that her surgery goes as smoothly as possible, considering all the risks that come along with such a surgery. My heart aches for her every second of the day. We greatly appreciate any and all prayers.

With the help of family and friends we have started a medical fund for Bentley. We are selling Bentley Bracelet’s in hopes to raise money for Bentley’s upcoming heart surgery. They are super cute and come in the cutest colors! Each bracelet reads “I Heart Bentley”. They come in two sizes, adult and youth. We thank you from the bottom of our hearts for your prayers and support! To order a bracelet, please contact Bentley's Mommy via their blog HERE.Thank you so much Angie for all you do. I am so very blessed to have met you (online) a few years back. You are such an amazing person and you inspire me in so many ways!

Blessings, Crystal
http://www.youandmeplusthree.com/

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posted by Angie Seaman at 6:26 PM | 1 comments

Monday, March 23, 2009
PRAYERS FOR AVA - HEART SURGERY

Dear Angie:
Let me preface this email by saying I think your blog is amazing and from what I am able to gather from your blog, you and your family are amazing too! I truly applaud your faith and wish I could have the same (although it is something I am working on). It is very strange to email you since I do not "know" you, but I guess that is what blogging is all about, right?
Anyway, I stumbled upon your prayer blog and am now calling out for my own prayers. My daughter is five years old and lives with complex cardiac congenital heart disease and will be having her third and last open heart surgery tomorrow morning. It is going to be a long six hours...whew...I will be thrilled when the day is over. We expect nothing but good things tomorrow but it is going to be a LONG ROAD and a three week hospital stay expected. I try not to think of what may be or what could happen...
Ava is an amazing child and she fills my heart with such love and goodness...she makes me want to be a better person! :) So please, say a special prayer for my girl, a smooth operation and a healthy recovery!
One of my favorite quotes is from the movie Cast Away..."I have to keep breathing, because tomorrow the Sun will rise, and who knows what the tide will bring?"
Thank you Angie!
xoxo, Amy LaRue Bennett

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posted by Angie Seaman at 12:16 PM | 3 comments

Monday, February 23, 2009
PRAYERS FOR GRACIE
Angie,
Gracie is in need of immediate prayers. To make a long story short, she had a heart transplant on February 22. They thought her body was rejecting her heart. They ran test and it came back negative which meant her body wasn't rejecting the heart (good news) but now they believe the new heart was bad (bad news). Things are just not going the way that they hoped for. At the moment, I believe they are just watching her to see how things playout and might be re-listing her for a re-transplant today. Gracie has been fighting a hard battle with CHD congenital heart defect since she was born. This family needs our prayers, Gracie needs our prayers! Thank you for such an amazing blog Angie, you rock!
Crystal (another heart mommy)
PS...HERE is Gracie's blog. Thanks again Angie!!!!!!

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posted by Angie Seaman at 7:19 AM | 1 comments

Tuesday, February 10, 2009
BABY CORA
Hey Angie, I read your blog every day and often have withdrawals when you don't post for a day or two. You have really touched my life in so many ways that you can't imagine. I know God drew me to your post for a reason. I have been following Cora McClenahan's post for a week and came across a blogger that is raising money for the Playground they want to put in at their church. You can visit this wonderful blog and pass it on to all the AGD girls if you want. I have not started blogging yet but hope to soon. Her blog is HERE.
Thanks so much, Kendall Fletcher

PS...FYI for all of you not familiar with baby Cora. Cora Paige had a few strange symptoms a couple of weeks ago. (i.e., mysterious black eye, not feeling well, etc.) When her parents took her to the doctor to have her further examined, they discovered she had cancer. That was two weeks ago. Baby Cora passed away on Sunday morning. She looked to be hanging on but in two weeks time went from bad to worse. Jesus took her home this past weekend. She was just 11 months old and didn't even get the chance to reach her first birthday. Please stop by her Mom's blog which is highlighted above and let them know that you are praying for them. Her funeral was today so I'm sure this has been an extremely tough day for them. After that, stop by Julie's blog in regards to the fundraising they are doing in honor of Cora's life.
In him, Angie

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posted by Angie Seaman at 2:13 PM | 0 comments

Sunday, February 8, 2009
PRAYERS FOR ABBY - LEUKEMIA
Hi Angie. I just found your blog, due to a Google Alert for Cystic Fibrosis. I will pray for Dane (in the blog post below), as well as all of the others on your blog. What a wonderful way to get prayer requests out! I have a prayer request for a blog friend of mine. You may have heard of them. Abby, 4 years old, has Leukemia. She is in immense pain, and in the part of her treatment that is very critical. Her family has amazing strength and faith in God, and know that His will is being done, but it does not make all that they are going through any easier. Please add them to your prayer blog, and help get word out about their struggle. You can visit their site HERE.
Thank you, Cindy


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posted by Angie Seaman at 5:25 AM | 0 comments

This blog is intended for those individuals requesting prayer for themselves or someone they know who needs prayer as well. Whether we know you personally or whether you are just a passer by on this blog, we would love to lift you or someone you know up in prayer.

Do you have a praise? If so, we'd love to hear about that and share Gods blessings as well. The bible states that for two or more people who come together in agreement of prayer will have their prayers answered. Therefore, this place is our place to lift one another up when prayer calls all while knowing that there are not just two but hundreds of us in agreement.

Want to keep things anonymous, we can do that too. Either post anonymously on the blog or feel free to shoot me an email at Angie@AngelicaGraceDesigns.com. No matter what, your prayers are safe with us should you not want names and full details released to the blog world.

In His Grip,
Angie Seaman